Today was our first ultrasound appointment since our not so favorite day...
We went in and I was a giant chatty Kathy as we waited in the waiting room. If you know me at all, you know that when I am nervous I just talk and talk and talk. Trey was very sweet and was my talking partner today. They finally let us in and it was another good hour of looking at London and her heart. I have become much more observant in ultrasounds after the last one and watched every second. Every word they typed and sound they listened to, I watched. The lady typed the words "cerebellum" "aorta" "pulm vein" "kidneys" etc. A sigh of relief would come each time she would type those words because I would know that means "SHE HAS THAT!" It sounds so silly but now that I am in the world of birth defects, I am worried about ALL the birth defects.
Dr. Stanley came in and was so sweet... Remembered us and every lick of conversation we have had or had that day three weeks ago. He looked at her and said the same thing he said last time but also the words "she looks perfect everywhere else. Nothing worse by any means."
That was such a sigh of relief. Although her heart condition is very serious, fatal if not treated...she is fixable. Her condition is not "hopeless", in fact, she has about a 85% chance of doing well.
If we can get London through her three open heart surgeries (gulp!) we can make it through.
Don't get me wrong - today was hard. I'm much stronger than three weeks ago and can accept three open heart surgeries easier because it is necessary for her life...but I don't want it. If I could give anything, pay anything, give anything out of my body...I would. But I cant, I can be her mother and pray for her. As much as I would like for it to go away and as much as I wanted it to, it didn't. But her story isn't over yet!
London's funny personality traits:
She has reallyy long skinny legs
She has pouty lips (just like her mama!)
A pointy nose just like the Horkey side
Long skinny feet
She loves her feet and hands right by her face, that's right, shes basically in stretching upside down at all times.
She moves ALOT
Trey calls her Londybear, which is hilarious. Every time I see bears I think of the princess. Bears and hearts are in her future.
After work today I had a hair appointment, which was just a great end to today. I'm stressed, relieved, sad, happy and overwhelmed all at the same time. I am so grateful for prayers, overwhelmed that this is our future, but hopeful and grateful for all the other bridges we missed.
No comments:
Post a Comment